Thursday, February 26, 2009

Shayans Law: or How'd You Like to Pay Out Of Pocket For Autism treatments?

I found this blog today and had to share as we are trying to get Shayans Law passed.

Shayan's Law or: How'd You Like To Pay Out Of Pocket For All Your Doctors?

http://geeked-up.blogspot.com/2009/01/shayans-law-or-howd-you-like-to-pay-out.html

You want to know something that's really awesome? When I take Bug to his doctor visits regarding his Asperger's (high functioning autism), I only have to pay around $200 a visit. I'm lucky, because his autism is high functioning and the free programs via his school system plus work I'm able to do from home are enough to get him along every day and help him succeed.There are families out there with children who have autism far more severe than Bug, who pay thousands a month for their treatment. Because Washington State does NOT require any insurance coverage for Autism Spectrum Disorder treatment.

Which means all costs--the expensive doctors: the main doctor, the speech therapist, the behavioral therapist, play therapy and even medication, comes straight out of parent's already-tight pockets (Thanks economy!).

People have been forced to move out of their homes to be able to afford treatment for their children, which is absolutely monstrous. Treatment these kids thrive on, treatments that help them adjust and succeed in every day life are seen as 'optional', I've met doctors who give LESS of a damn about what they do because they think they won't get paid and some parents aren't able to get their kids the aid they need at all because of the cost.Some very excellent and hard-working people have put together Shayan's Law, and passing it will mean insurance companies must cover ASD treatment in our state. This cause is a very near and dear one to my heart, as it directly affects not just my own family, but tons of other wonderful people across the state.

If you guys could take ten minutes today to show your support for us, yourselves and other people you know, that'd be wonderful. I don't really do this kind of thing often, but it's extremely important this law gets passed and what better platform to turn to than you guys?Thanks, all, we really appreciate it (and just to note, the phone script isn't mine).

Two Ways You Can Help
By Phone: Make nine brief calls to the Senate health care committee members' offices and read them the following script:
Hi. My name is _____________. I live in ______, and I want to ask you a favor. I have/know a (child/grandchild/godson with autism) or (am a teacher/ therapist of a child with autism), and I would like for you to vote yes!!! for Shayan's Law-Senate Bill 5203.Shayan's law provides medically necessary treatments for autism. Please vote 'yes' on this bill.

Karen Keiser, Chair: (360) 786-7664
Rosa Franklin, Vice Chair: (360) 786-7656
Randi Becker: (360) 786-7602
Cheryl Pflug: (360) 786-7608
Darlene Fairley: (360) 786-7662
Chris Marr: (360) 786-7610
Ed Murray: (360) 786-7628
Linda Evans Parlette: (360) 786-7622
Margarita Prentice: (360) 786-7616

If the Legislator or Legislative Aide asks for more information about the bill, refer him or her to Arzu Forough, Arzu@WashingtonAutismAdvocacy.org

By email:

1. CALL AND EMAIL THE CHAIR OF THE SENATE COMMITTEE, Senator Karen Keiser, today and continue to call her for the next 48 hours. Ask her to please schedule a vote on Shayan's Law in an executive session! Share your personal stories and convey the following message: Autism is a treatable medical condition. Insurance should cover the treatment. Be polite and persistent. Ask her to please schedule the bill for an executive session vote so that it can continue through the legislative process! Keep dialing until you get through!

Call Senator Karen Keiser - (360) 786-7664
Send an Email to Senator Karen Keiser HERE!

2. CALL AND EMAIL THE CHAIR OF THE HOUSE COMMITTEE, Representative Eileen Cody, today and continue to call her for the next 48 hours. Ask her to schedule a hearing for Shayan's Law! Share your personal stories and convey the following message: Autism is a treatable medical condition. Insurance should cover the treatment. Be polite and persistent. Ask her to please schedule the bill for an executive session vote so that it can continue through the legislative process! Keep dialing until you get through!

Call Representative Eileen Cody - (360) 786-7978
Send an Email to Representative Elieen Cody HERE!

Wednesday, February 25, 2009

How cool-- Chalkboard Paint


Since my sons bedroom could use a bit of repainting (perhaps a light blue color, since the color blue has a calming effect-- LOL) I thought this would be a great idea for one of Noah's bedroom walls as well, but use "magnetic" chalkboard paint. :)

Look! Chalkboard Paint on a Kitchen Wall
We see so many cool things that people do in their homes, and this one seemed perfect for Art Month, since you can make the art yourself.
This comes to us from Brenda and Dave in Chicago. They used chalkboard paint not just to paint a patch of their wall, but to paint the WHOLE wall. Now they are and their son can scribble and keep notes and numbers on the kitchen wall without anyone getting into trouble. (thanks, B & D!)

Tuesday, February 24, 2009

Steals and Deals....

Great website! Just click on the icon to go to their page: :)

Steals & Deals

Tuesday, February 10, 2009

20 Things that I have learned about Life :)


"Life is a Journey, not a Destination!"

I was just brainstorming the other day & since my birthday is next week; I had fun looking back & jotting down a few things that I have learned about life & myself along the way.:) Wow-- I sure have grown! :)


I've learned that:

1. I believe that the Lord puts dreams in our hearts for a good reason. Give your dreams over to God & trust that he will work them out in his own timing and not our own! :)

2. In elementary school, I occasionally got into trouble for staring out the window and daydreaming. Today, I am still dreaming with childlike faith & I still dream big! Ive also learned that when a dream dies, then just dream another dream for another opportunity to come my way! :)

3. Share your dreams with those who understand and and can be supportive. Life is full of naysayers, so I try to not to let them discourage me & give up on the dreams that the Lord has put in my heart! :)

4. Attitude is everything-- choosing to be positive makes a big difference in rising above adversities! Ive heard it said that our ATTITUDE determines our ALTITUDE in life. :)

5. Dont sweat the small stuff and pick your battles carefully. Life is just too complicated as it is! :)

6. Forgive others quickly & turn offenses over to God. Holding unforgiveness in our hearts is like drinking poison ourselves and wishing the other person dead & a hazard to our health!
I'd rather focus on what someone has done FOR me, rather that TO me. :)

7. Having a child diagnosed with Autism isnt a death sentence-- It just means that the Lord trusted me & my husband enough to care for this very special child . I feel honored that we are entrusted with Noahs care.

8. Everyone is not going to like me and that is okay, cause I like who I am. I no longer let others opinions define me.

9. Standing up for what I believe in, even if it means losing a few friends along the way!

10. To Not take things so personally.... why carry the burden?

11. Sometimes when someone/something annoys me, it is like looking into a mirror image of a certain weakness inside of myself that needs my attention. This can be good thing, even though its painful sometimes... cause we all want to grow, right???

12. The word "FEAR" is just False Evidence Appearing Real!

13. Dont live in the past, cause I cant move forward if I am still looking backward!

14. Dont waste precious time worrying about what others think-- cause I wont always be able to please everyone.

15. If I dont like my circumstances and I cant change them, then I try to change the way that I think about it. Getting a fresh perspective & looking for the bright side of somthing surely works!

16. To not beat myself up over past mistakes and things that I cant change or have no control over. I'd rather focus on my milestones and not my mistakes.

17. Home is wherever we make it and it is so much more than my familys address whether it be a house or an apartment. Besides, its the memories that I cherish the most... :) I still have fond memories of when I was a single Mom living in an apartment with my 'tween boys before I met and married Joel.

18. To treat our grown children as equals and enjoy their friendship. I may or may not always like their choices, but I have to realize that I have to cut the apron strings sometime and give them the freedom to make their own choices/mistakes or how will they learn and grow?

19. I never let a day go by without telling my children/family/spouse how much I love them, cause tommorrow is never certain.

20. Its okay to indulge every now and then to get away from the kids.
Ive heard it said that "Put on your own oxygen mask before assisting others," which is so very true& time away from my kids makes me a better Mom!